Parents who are getting older and special children who are in their prime but cannot do without care… “Supporting the disabled” families are looking forward to social assistance
Text/Yangcheng Evening News All-Media Reporter Li Meiyan Intern Guo Yixuan
Liwan District, at 6 am, 78-year-old Aunt Xian got up and prepared breakfast, turned around and walked into the room to wake up her daughter to take medicine, and helped her record the heart rate in the morning; Haizhu District, at 9 am, it was already a bit difficult for Aunt Lian, 74, to get up and down the four-story stairs, but in order to allow her daughter who doesn’t like to go out more, she insisted on taking her daughter to the vegetable market to buy vegetables; at 4 pm, Aunt Liao, 65, directed her son to move a bag of clothes to the second floor, and they planned to send these clothes to her friends in the hospital the next day.
They are typical families who “support the disabled by the elderly”Komiks 1960 witch cloth draw: The parents are at retirement age, but because their only children are accompanied by intellectual or mental disorders, they still run around to support their disabled children, making it difficult to enjoy their old age as their peers.
In December last year, Guangzhou Yangai Special Children Parent Club, the first social service institution in China to serve parents of special children, conducted a survey on nearly 600 ordinary elderly people and nearly 3Komiks 1960 witch cloth draw00 “old and disabled” families with mentally disabled “old and disabled” and released the “Research Report on the Elderly Care Services of Mental Retards in Guangzhou”. When mentioning the difficulties and challenges of children’s future resettlement planning, more than 60% of parents are most worried that their children’s lives are not guaranteed.
The elderly parents and special children who are in their prime but cannot do without care, the elderly and the elderly are tangled into a huge question mark, waiting for the society to straighten it with practical actions.
Two-year-old families with mentally disabled participate in parent-child fun sports meetings
78-year-old mother and 44-year-old daughter: the thoughtful plan and the increasingly aging reality
2016 is the most difficult year in Aunt Xian’s memory – firstMy wife was sent to the ICU after being hospitalized for aggravated emphysema. After three months of hospitalization, she finally returned home to rest. Her daughter A Ting, who was mentally disabled, suffered a stroke and was admitted to the hospital.
Aunt Xian, who was 72 years old at that time, took on the burden of the family alone. He ran around the hospital every day and carefully took care of the two bedridden patients until their condition gradually stabilized. During that time, she lost more than ten pounds at once.
But the crisis has not really passed. In August 2020, her husband, who had been bedridden for a long time, passed away. In September, A Ting was admitted to the hospital due to swelling throughout her body. The problem of bradycardia after the stroke became more and more serious. At the lowest point, her heart rate was only more than 20 times per minute. The doctor suggested installing a pacemaker for A Ting, otherwise “it is possible to fall asleep and the person will be gone.”
“It would be fine if I really fell asleep and left, but I was afraid of being paralyzed and even suffering.” Aunt Xian said that A Ting was hospitalized three times last year. For a period of time, she even had difficulty getting up and had to deal with urination and defecation in bed. In August last year, she made up her mind to install a pacemaker for A Ting: “I’m recovering well now, but my right hand is not as flexible as before and I can’t hold things.”
The hardest time was when I was in the hospital for a caregiver. Aunt Xian, 78, has hypertension, diabetes and heart disease, and her health is no longer as good as before. Once, A Ting was hospitalized for two weeks and happened to have an available bed in the ward, so she pleaded with the doctor and went in. For this reason, she has been thinking about the hospital and the doctor: “I also have a heart disease, and I can’t take care of myself even if I take care of my daughter. The doctor asked me and my daughter to be hospitalized together, which saved me from hiring a nursing staff.”
Considering that I am getting older, Aunt Xian has asked many questions over the years and made as careful arrangements for her 44-year-old daughter: She has joined the unit for her daughter and bought social security for more than 14 years. Now she is still missing 9 months and is 15.Babaylan 1990 clothes draw has been drawn for many years; she bought two “Safety Project” insurances. Last year, A Ting’s three hospitalizations totaled more than 130,000 yuan, and finally the medical insurance and insurance reimbursement was only more than 15,000 yuan. She also applied for a waiting list for her daughter in the Guangzhou Disabled Care Home, hoping that when she was unable to take care of her daughter in the future, her daughter could spend the rest of her life in the nursing home; she even began to consider who would be her daughter’s guardian after she left.
The thoughtful plan faces the increasingly aging reality, sometimes it is inevitable to be stretched. In September last year, due to the increasing problem of lumbar disc herniation, Aunt Xian had to be hospitalized for surgery. But now A Ting is unable to take care of herself at home alone. In desperation, she had to ask her sister to come to take care of her for a few days, and “my sister is also in her 70s.”
Some time ago, the staff came to Aunt Xian to conduct a comprehensive assessment of her elderly care needs, and the assessment results were mild disability and second-level care. “To take good care of her, I must ensure that I am healthy.” Since A Ting suffered a stroke, Aunt Xian has been sleeping in the same bed with her daughter in order to facilitate night care.There was some movement and I had to get up to check it out, “I hope I can stay at home until I can’t take care of her, and see if it’s possible to live in a nursing home with her.”
A Ting (left) and Aunt Xian were looking at photos of their previous travel.
65-year-old mother and 38-year-old sonCinema 1950 witch clothes draw: “If you have the ability to take care of yourself, you will live a better life in the nursing home in the future.” “Catch this place with your right hand and pick it up.” As soon as he came back from outside, Aunt Liao directed his son A Ming to move a bag of clothes to the second floor. A Ming wiped his sweat, grabbed the knot pointing to by his mother with his right hand, and took the bag into his arms with his left hand. He looked focused, without saying a word, and obediently walked towards the stairs.
This is the daily life of the mother and son. 38-year-old A Ming was diagnosed with an intellectual disability since childhood and it was difficult to complete slightly complicated tasks independently. Aunt Liao, 65, patiently dismantled each move one by one and converted it into instructions that her son could understand and execute, so as to exercise his ability to take care of himself.
“In 2007, he suddenly fell ill, and after 10 years of adjustment, his condition was basically stable. “Now I think back, Aunt Liao still blames himself. Ah Ming suffered from epilepsy at the age of 6, but at that time, because of his lack of understanding of this disease, he missed the best time to effectively control it. In 2007, A Ming’s condition turned sharply. The schizophrenia caused by epilepsy made him unable to sleep at night. “Sometimes a man muttered and spoke to the air Komiks 1960 witch cloth draw“. In those 10 years, she took her son to seek medical treatment and medicine: “At the beginning, the monthly pension was only 1,111 yuan, and he had to spend six or seven hundred yuan a month just taking medicine.”
She never avoided his condition in front of A Ming, and even often “vaccinate” to him, saying, “My mother will leave sooner or later.”. In the race against time and disability, her desire to help her son realize her basic self-care is becoming more and more urgent: “If I leave, he has the ability to take care of himself, and in the future he will live a better life in the security nursing home.” At the beginning of this year, Aunt Liao had to be admitted to the hospital for thyroid problems, and how to take care of A Ming’s daily life became the biggest problem.
She left enough food in the iron box where she kept her change, and appointed A Ming to solve three meals a day at a snack shop near her home, and asked the owner of the snack shop to help him pay attention to A Ming’s situation. At the same time, she entrusted a distant relative to accompany A Ming at home every night to prevent accidents such as “touching the electric door with wet hands”. Only after everything was arranged was made, she could handle the admission procedures with peace of mind.
But while Aunt Liao was hospitalized, A Ming, who had not seen her mother for a long time, called and said, “You are not at home, I am so lonely alone.” This phone call made her break her defense instantly. She softly comforted the other end of the phone, “You clean the house and your mother will come back.” The obedient A Ming focused on shiny tables, chairs, benches, and corners in the house: “He wiped the iron gate outside the house, but the wind blew the door slammed and locked him outside.”
Now A Ming, nowadays, can eat, dress, bath and go to the toilet by himself, shop independently, and carefully place the things at home neatly. Occasionally, he listened quietly to the tricycle outside the door crossing the loose stone road and left with a “bang” all the way. He likes to play basketball and often lingers around Yuexiu Park Stadium with the ball, waiting for the evening to gradually fewer people in the court, and carefully shoot on the court. He also likes to browse current news on his mobile phone, claiming that he likes to watch international news the most. Even when reporters asked him what were the popular international news that day, he blurted out that “Biden was infected with the new crown.”
A Ming like this also made Aunt Liao imagine what would happen if her son had a sound mind development: “In that case, he should have already started a family now.”
Parents of special children gathered together to participate in Cinema 1950 witch clothes draw Add entertainment activities
75-year-old mother and 38-year-old daughter: breathing service, let family affection take occasional vacation
After her husband passed away, href=”https://funnybookish.com/”>Cinema 1950 witch cloth drawPhotoThe burden of protecting his only daughter Longlong, who is mentally disabled, is pressing on Aunt Lian’s shoulders.
From outsiders’ perspective, Longlong, 38 years old this year, is not considered a caring “little cotton-padded jacket”. She is sensitive by nature and does not like to contact the outside world. She often stays at home to watch the cartoon “The Guardian of the Universe” or reads the early education storybooks borrowed by Aunt Lian from the library. Sometimes she has a change in emotions and will get angry at her elderly mother and break up 6 elderly phones of Aunt Lian.
“Although I have raised her for more than 30 years, sometimes I don’t know what she is thinking.” Aunt Lian said that Longlong’s temper comes and goes as fast as a child’s Cinema 1950 witch cloth draw‘s child. “For example, if the food is cold and she asks her to heat it up before eating, she will be unhappy. Sometimes she is taking medicine and telling her to pack up the things for a while, and she will be unhappy again.”
Mothers always use the greatest kindness to tolerate and understand the child. In Aunt Lian’s opinion, Longlong has poor language expression skills. She knows some things but cannot express them, so she will be anxious. At this time, “Don’t conflict with her head, and you can only reason with her after she gets angry.”
But the mother, who is overwhelmed by the double burden of life and psychology, also longs to be tolerated and understood. After Longlong lost his temper again and even beat someone, the frustrated Aunt Lian called the help number of the Guangzhou Yangai Special Children Babaylan 1990 cloth draw Parent Club. That night, Yang Ai arranged for Babaylan 1990 cloth draw to move into Longlong’s house. Komiks 1960 witch cloth draw to temporarily take over the care burden on Aunt Lian, allowing Aunt Lian to go to her sister’s house for a short rest for a week. When talking about this rare “respray service”, Aunt Lian is still full of gratitude: during that time, social workers helped take care of Longlong, led her to learn how to buy vegetables and cook, and study at the street medical station. After even discovering the safety hazards of the kitchen Cinema 1950 witch cloth draw, she assisted in contacting professionals to renovate the kitchen, “I see the kitchen now, and I think”I will ignore you if I get angry”, but to Longlong, Aunt Lian always surrendered: “What’s the solution? I can’t let her go.” ”
When her husband was hospitalized in 2009, Lian Auntie ran around at home, and she was unable to find a place suitable for temporary custody of mentally disabled people. She could only send her daughter to the home of her own sister to take care of her.
In 2016, Lian Auntie had to be admitted to the hospital for surgery due to lumbar disc herniation. She was worried that she could not take Longlong. Babaylan 1990 clothes Draw also took her to the hospital together: the mother and daughter had three meals a day in the hospital canteen. During the day, Longlong sat and played in the hospital or chatted with the nurses. After dinner, he went home to take a shower and sleep. During the three months after going home to bed and rest, because it was inconvenient to buy vegetables and cook for Long. Aunt Lian specially hired a nurse to help. “She is getting older and older, and our destination is always a nursing home. When I still have the ability, I always want to let her live a warm life with a family. “When she mentioned the future, even her aunt had melancholy and helplessness in her tone. She planned to sell her current house in the future and take Longlong to live in the nursing home. “I hope that in the future there will be some such institutions that can accept me Babaylan 1990 clothes draw and they moved in together. ”
Parents of special children participate in the theme activity of the lawyer’s open day heritage guardianship
In-depth interpretation
How to support the elderly with “using the elderly to support the disabled”:
The answer is still being explored. Changes have occurred
Parents who are getting older are still away from their prime years.It is hoped that an institution can accept elderly parents and disabled children at the same time – it is the same voice of Aunt Lian and others.
The “2020 Guangdong Province Disabled Career Development Statistical Bulletin of Guangdong Province’s Disabled Career Services” shows that as of the end of 2020, there were 1,774 disabled care service institutions in Guangdong Province, including 30 boarding care service institutions, 1,695 day care institutions, and 49 comprehensive care service institutions. But for older people with mental disabilities, the more common choice is to go to public care institutions. In Guangzhou, there is only one public care institution that is counterpart to those with mental disabilities.
In March this year, Aunt Lian ranked for Longlong at the Guangzhou disabled hospital for disabled people. The latest waiting list for application is 692. As of June 29 this year, 706 people have applied to Guangzhou Disabled Care Home for Nursing. The application time shows that the first-ranked waiting staff has been waiting for 11 years – he applied for waiting in July 2011.
How many families like this “supporting the disabled” in Guangzhou are still there? This may be seen from a set of public data: data from Guangzhou Sunshine Angel Social Work Service Center shows that there are 1,730 registered disabled people in Shilou Town, Panyu District, Guangzhou, and among the disabled people, there are 117 families with disabilities who rely on care and support for elderly people aged 60 or above. There are 117 families with disabled people in need, accounting for 6.8% of the disabled people.
“If you press Komiks 1960 witch clothes drawThe ratio estimates that there are about 20,000 to 30,000 families in Guangzhou with the elderly and support for disabled people. If these parents leave in the future, the placement of children will be a big problem and need to be intervened and paid attention in advance. “Liang Zhitu, Director-General of Guangzhou Yangai Special Children Parent Club, told reporters that starting from 2018, Yangai has established a member group for double-old families to provide case management, life care, emotional support, information and home skills training and other services for double-old families with mentally disabled people. “We hope to pass In this way, we explore how to provide service support for families with “using the elderly to support the disabled” is different from ordinary elderly care services and from special children whose parents are not yet retired. “
In Liang Zhitu’s view, the key to truly solving these special family elderly care problems is to return to the community’s home-based elderly care: “This group is too large, and the government’s bottom-up measures can only digest thousands of beds at most. Can existing community elderly care service resources, rehabilitation and household service resources, etc. be applicable to the “Old and disabled families? How to ensure the service and quality of life of these special families? These issues must be considered in future policy design. ”
The answer is still being explored, but some good changes are quietly happening.
In June 2019, under the guidance of the disability federation of Yuexiu District, Guangzhou City, the “Guangzhou Regional College Support Pilot Project for Two Elderly Family Support for Mental Disabled People” was officially launched, and some regular and emergency response services have been gradually formed, such as providing psychological counseling and emotional support, coordinating home-based elderly care personnel to take care of mentally disabled people in the short term to reduce the burden on parents of mentally disabled people, etc. At the same time, it is also gradually improving the service resource library and service support system.</p Liang Zhitu found that among the more than 30 families they provide case management, parents have gradually learned to refine specific needs, such as how to reasonably plan property and how to do custody, etc., and have a clearer understanding of children's future planning and resettlement.
It is reported that Guangzhou Yangai Special Children Parent Club has implemented the “Guangzhou ‘Old and Disabled Family Energy Enhancement Support Plan” this year through the implementation of the 9th Guangzhou Social Organization Public Welfare Venture Capital Funding Project “Guangzhou ‘Old and Disabled’ Family Energy Enhancement Support Plan” href=”https://funnybookish.com/”>Babaylan 1990 cloth draw‘s practical experience extends services to more families with “super-aged care for the elderly”. “At the same time, we have also discovered some new needs, such as breathing services, and the government currently does not have relevant service resources. In the next step, we are preparing to establish a temporary care point and explore related service models. “Liang Zhitu said.
(At the request of the interviewees, A Ting, A Ming and Long Cinema 1950 witch cloth drawLong are all pseudonyms.)